Stories
Stories from our members on how reflux or associated conditions has affected their families.
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Support for Wellbeing, Awareness Week 2023
I was recently asked by a team of doctors in training: “What is one thing, you wish we as doctors could give?” And the truth is there isn’t just “one thing”. Babies with reflux don’t just have 1 thing. Families with reflux babies don’t need just 1 thing. I’m a Mum of 2 beautiful little girls. Both have a myriad of ‘things’. Ranging from laryngomalacia, tracheomalacia, obstructive apnoea, clefts, high arched palates…the list goes on. Naturally, their reflux has been more complicated than most, but that’s not uncommon for reflux babies. How could I possibly just ask “1 thing” Somehow, we got on the topic of babies being admitted to…
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Family Impact, Awareness Week 2023
Mitchell has found it hard being an older child with reflux and not being understood by those around him. For the sibling of a child with reflux it meant that Victoria lost her sense of security. We would be having a normal day and then a bout of pain would lead to a trip to the emergency department and the whole family routine was thrown out. During COVID Victoria couldn’t travel to Christchurch for Mitchells surgeries and procedures, and we didn’t realise the impact on the child left behind until after it all. Reflux doesn’t just affect the one person but the entire family. We as parents have had to…
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Cambridge News Crying over spilt milk
Jenny, National Coordinator of the Gastric Reflux Support Network was was interviewed recently by The Cambridge News about her son Tobias’s reflux journey and what led her to want to support others on their journey. Read the article here: https://www.cambridgenews.nz/2022/06/crying-over-spilt-milk Written for National Infant and Child Gastric Reflux Awareness Week 2022
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Karli’s Reflux Journey – Awareness Week 2022
5 years ago; I found out I was pregnant. My 3rd pregnancy, amidst a journey of pregnancy loss, infertility and other such issues. It was Motherâs Day 2017. Back then, things like reflux, laryngomalacia, food aversions, postnatal depression, all were things Iâd had little to no experience with, they werenât even anywhere NEAR my radar of possibilities. I couldnât have even TOLD you what laryngomalacia was, or what postnatal depression even felt like. Iâd heard of âspilly babiesâ and âhappy chuckersâ â and I knew that people with breathing difficulties got pneumonia when they get colds. But that was the extent of my knowledge. Fast forward to Jan 2018. My…
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Mabel’s Story – Awareness Week 2022
We have been on the reflux journey with our little Mabel for many months now and sheâs just getting worse as the days go on despite multiple daily medications, Omeprazole, Domperidone and Famotidine. We have seen multiple doctors and paediatricians to try and help Mabel and to be honest nothing we have tried really helps. We have been diagnosed with severe silent reflux. Itâs truly awful to see your precious wee one in so much pain every day. You miss out on the magical moments, you donât get to see her beautiful personality shine through because of the chronic pain. We have tried many alternative therapies, treatments and everything suggested…
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Xavierâs Story – Awareness Week 2022
I am mum of 3 boys who all had reflux as babies. Strangely my third boy had a much milder version. All three âoutgrewâ reflux as they were more upright. Or so I thought. One morning when Xavier was 6 he was agitated and pacing in the lounge saying he âdidnât feel rightâ. His dad got him a bowl and he immediately vomited a significant amount of blood. Being an ex-nurse I collected the blood in a Tupperware container and put him in the car and headed to Angelsea clinic. After triage and showing them the amount of blood (over 200 ml) we were sent straight to Waikato Hospital. Little…
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Elei’s Story – Awareness Week 2021
Our son Tyson was born a little overdue, we got there in the end, back and forth to Maternity but 3rd time a charm. After being given the okay we were left to go to the birth centre to recover. But he wasnât settling, obâs every 2hrs, the morning nurse came in and next we were in NICU for 7 days. Fast forward to 6 months old, Tyson was a dream, but we started having issues with his weight, they kept putting a Nasal Gastric tube in and out, back and forth to A&E, then we found he had chronic constipation, he was put on IV Clean Prep and we…
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Mackenzie’s Journey of reflux and dietary intolerance – Awareness Week 2021
Nothing can prepare you for having a baby in a pandemic. Our beautiful little girl Mackenzie was born during level 3, we couldnât have any visitors and all our family were half a world away in South Africa with no way of getting to us. I found the whole experience overwhelming and quickly developed severe post-partum anxiety. When she was two weeks old, my husband had to return to work, leaving me on my own with a baby that screamed constantly and without the one person keeping me together. I was convinced there was something wrong but my midwife, brilliant as she absolutely was, kept reassuring me that newborns are…
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Journey of Reflux during Lockdown – Awareness Week 2021
Journey of Reflux during Lockdown Barely three weeks after becoming a mum, NZ was thrown into lockdown; supports and practical help cut off. Instead, I found myself with a husband working from home and a baby that was incredibly distressed. This was not the start to motherhood that I had imagined. Just prior to lockdown the GP advised us that they suspected our daughter had cowâs milk protein intolerance (CMPI). She was put on Pepti Junior formula to help with that. Heading into lockdown she was starting to settle but then the progress quickly plateaued. My days during lockdown quickly became spent trying to console my upset baby or trying…
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Post Natal Depression: Bec’s Story. Awareness Week 2020
I sit in the comfortable leather chair, feet reclined, and try to count my blessings. A single salty tear runs down my cheek, and then another until my vision begins to blur. Through the baby monitor I can hear him crying again and I know that I must go to him. But I donât want to. The tears begin to cascade down my face now, as I stand, trying to blink and compose myself. I grab some toilet paper and blow my nose, because we have run out of tissues. It feels scratchy but I donât care. I go into his room and I pick him up, making gentle soothing…